Killer KN/T-Cell Lymphoma

Killer NK/T-cell lymphoma Information Cancer Research UK

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My brother Brad's Battle with NK/T-Cell Lymphoma: A Story of Perseverance🕊️ 

Introduction to Brad's Struggle


Brad has been bravely battling a rare and 🎗️ aggressive form of cancer—NK/T-cell lymphoma—that has severely impacted his sinuses, voice box, and overall health.

 Symptoms, Misdiagnosis, and Delays

• This type of lymphoma comes with symptoms like persistent sinus congestion, nasal pain, difficulty swallowing, voice loss, and sometimes facial swelling.

• Unfortunately, these symptoms are often overlooked or misdiagnosed because they mimic less serious conditions such as sinus infections or mold allergies.

• In Brad’s case, the symptoms persisted for months, and initially, doctors thought it was due to mold spores or other minor ailments.

• Because of this common issue—where these symptoms are overlooked or misdiagnosed—months went by before the real problem was finally identified.

  The Diagnosis 📋🩺

• It wasn’t until his condition worsened significantly, and a biopsy was finally performed, that the true diagnosis was revealed: NK/T-cell lymphoma.

⚕️The Significance of Awareness

• This story highlights the importance of awareness:🎗️

• If you or someone you know experiences ongoing sinus problems, nasal pain,  difficulty swallowing, or voice changes—especially if symptoms worsen or persist—prompt medical evaluation is critical.

• Early detection can save lives, as this lymphoma is often diagnosed too late due to initial misdiagnosis or oversight.

  Brad's Battle

   Brad’s fight is inspiring

• Despite the intense pain, burning sensations when swallowing, and the loss of taste, he refuses to give up.

• His doctors have recommended the placement of a feeding tube to help with nutrition, but Brad is fiercely resisting it, embodying that fighting spirit every day.

• He is currently undergoing daily radiation therapy and is preparing to start chemotherapy after completing his radiation cycles.

  The Exhausting Reality

• His journey is physically and emotionally exhausting — last month alone, he had over 30 medical appointments.

   A Mother's Burden

• Due to his difficulty speaking on the phone, his mother, aged 71, has taken on the immense responsibility of scheduling every appointment and arranging rides to and from the hospital, managing this heavy burden from afar.

  Challenges and Limited Resources

• Brad’s situation is further complicated by his Medicaid restrictions, which prevent him from moving out of Virginia without waiting 3 to 6 months for coverage.

• His illness requires urgent and continuous treatment that he cannot postpone, yet support remains limited.

• Often, he misses appointments because of lack of support, risking his recovery.

• This battle affects not only Brad but his entire family, especially his mother, who tirelessly supports him from a distance under great strain.

     The Need for Support 🫂

• The challenges of this disease, combined with the logistical and financial burdens, require a strong community of support.

💌 Please support Brad in his fight against NK/T-cell lymphoma by donating at GoFundMe.com/SaveBradsVoice

🫂💕🕊️

• If you believe anyone in your network or circle of family and friends might be interested in Brad’s story, please tag or share this

     Campaign Goals

🌟 Raising Awareness 🎗️💕
Help us expand awareness and reach as many supporters as possible — sharing this campaign can make a real difference in ensuring Brad receives the support he needs to continue fighting 🌟

🎗️ Together, we can stand with Brad and help him reach his goal faster.

Thank you for your generosity, support, and for spreading the word!

Follow this link to join
Brads Support Team: 🫂
https://chat.whatsapp.com/FIdAbSEah0mBmVFn9izO8L?mode=ems_share_t

Email:
voice@fundraiserboost.com

 

Every donation, every share, every message of encouragement is a lifeline. Together, we can help Brad keep fighting and save his voice.
 
Thank you for being part of this journey with us.
 
   With warm regards,
ღThe Jones Maiden Familyʃ♡
 
 
 
 
New addition: under 🚧 construction 
 
 

Together We Are Stronger

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larry Jones

 

Save Brad’s Voice Headquarters

Port St. Lucie, Florida

United States